COORDINATING ORGANIZATION
TURKEY: LOSEV-The Foundation for Children with Leukemia |
LOSEV is a Turkish non-governmental and a non-profit public benefit organization which provides support to children affected by leukemia and their families. LOSEV’s primary goal is to provide permanent solutions to their problems.
Our organization has founded LOSANTE- Hospital for children with Leukemia on October 2000, which is the one and only hospital for children with leukemia in Turkey. The treatment of leukemia is provided free of charge to leukemia-stricken children at LOSANTE.
LOSEV Elementary School has opened its doors in 2008 in Ankara, where children with leukemia receive education under the curriculum of the Ministry of Education. The House for Children with Leukemia provides free of charge accommodation to families who come to the capital city, Ankara from other cities for their children to access treatment opportunities.
LOSEV is a member of ICCCPO – International Confederation of Child Cancer Parent Organisations since 2004 and has been granted as an NGO in Special Consultative Status with the Economic and Social Council of the United Nations in the field of childhood health, especially in leukemia. |
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PARTNER ORGANIZATIONS
POLAND: Fundacja ORIMARI |
• Non-profit ORIMARI Foundation was established in 2006.
• The Foundation is financed out of its own means and those obtained from the donors.
• Its chairman is Mrs. Marzenna Szustowska, former Vice Miss Polonia who actively acted in favour of children.
• According to statute assumptions, the Foundation maintains a widely-understood care of children, in particular connected with their health problems.
• The Foundation's universal activity consists in the following: promoting preventive examinations, helping to establish contact with specialists, cooperating with oncologic hospitals, helping orphanages.
• The events it is organizing : Onco-Olympics, Social Campaign, You Love, You Care, You protect – Examine your child“, Charity Fashion Shows. |
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PORTUGAL: ACREDITAR – Associação de Pais e Amigos de Crianças com Cancro |
Acreditar – Association of Parents and Friends of Children with Cancer – is a Private Social Welfare Institution created in 1993 as a result of a national movement by parents of children, users of the paediatric oncology services. The following phrase embraces the philosophy of our project — “Care for the child with cancer, and not only the cancer within the child”.
Acreditar is an official founding member of ICCCPO – International Confederation of Child Cancer Parent Organisations.
All of our activities have a common objective: to humanize the areas, the language, the treatments, the support, and the daily life of children with cancer and their families, thereby creating a positive atmosphere of hope, which is essential for dealing with this illness.
With this aim, we promote various leisure and educational activities; we publish a number of books, both originals and translations, which are distributed free of charge to the families and children with cancer. One of the most successful projects is represented by the Houses of Acreditar. Here, children and their families, who live far from the hospital area, stay during the treatment periods, free of charge. |
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HUNGARY: Együtt a Daganatos Gyermekekért Alapítvány |
Together for Tumor Children Foundation was registered in Hungary 1999 as non governmental and non-profit, prominently public benefit organization. Our Foundation’s aim is to provide support to children affected by tumor and leukemia and their families.
Our Foundation helps the healing and curing process of children with tumor and leukemia in Hungary by buying surgical instruments, paying the renovations of the oncological and hematological departments. We give a monthly pecuniary aid for the most indigent families, who have serious cost-of-living problems. We ensure free psychological consultancy, special medical physical education, handicraft activity, medical and legal consultancy for children effected tumor and leukemia. We organize camping for children regularly to provide them the same life-style as the same age healthy children have. We give temporary accommodation opportunities free of charge to families who come from other cities to Budapest to access treatments for their child. |
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ROMANIA: P.A.V.E.L.-Primind Ajutor, Viata Este Luminoasa |
Association P.A.V.E.L. is the association of parents with children suffering of cancer, leukemia and grave anaemia and it is a humenitarian non-profit, non-governmental organization created in 1996 by a group of parents of children with cancer and leukemia. P.A.V.E.L means 1Receiving Help-Life is Bright”.
• Improve children and youth condition during the time when they are in hospital
• Organizing and running play-therapy spaces and services in 2 major hospitals in Bucharest : Oncologic Institute (pediatrics department) and Children Hospital M. S. Curie (oncology department)
• Supporting and helping families in need to reach appropriate medical and social services
• Parents home – providing hosting for families to avoid long term hospitalization
• Organizing and running P.A.V.E.L. Resources and Services Centre in partnership with the biggest public Oncologic Institute (IOB)
• Organizing various outreach activities and celebrating events
• Lobby and advocacy for improving medical and social situation of children, youth and their families |
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LUXEMBOURG: Een Häerz fir kriibskrank Kanner |
• Founded by concerned parents and friends of the cancer sick children.
• Moral, psychological, financial support to the cancer sick child/ youngster and their family. Administrative help and Palliative accompagnement.
• Leisure Programmes (Painting, crafts, nutrition and etc.) therapy : musical, equestrian, horses riding, climbing, diving, under water musical therapy, art dramatic classes, camps (sick child amd sibblings since 17 years in Luxembourg sponsored by the Rotary Club), l’ENVOL a Hole in the Wall Camp in France (Paul Newman)
• Info Library for family and also pedagogic info for the schools-in mother toungue.
• Support of the research.
• Membership for ICCCPO, SIOP, SIOP-EUROPE, EURORDIS, UICC, WCCF, PSAPOH.
• Cooperation project with the parents association from Trier and Homburg (Germany). |
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